Moni, dzina langa ndi Liv ndipo ndinapezeka ndi siteji 2 Hodgkin Lymphoma pa 12 Epulo 2022, miyezi inayi nditapeza chotupa pakhosi panga.
Madzulo a Khrisimasi 2021, mwachisawawa ndidapeza chotupa chotupa pakhosi panga chomwe chidangotuluka modzidzimutsa.
Nthawi yomweyo ndinapangana ndi telehealth kuti andiuze kuti sikuyenera kukhala vuto lalikulu ndikupita kwa GP wanga ndikatha kukafufuza. Chifukwa cha tchuthi chapagulu komanso nthawi yachisangalalo yotanganidwa, ndimayenera kudikirira kuti ndikawone dokotala yemwe adandiwuza kuti ndikapime ultrasound komanso kuwunika singano pakati pa Januware. Zotsatira za biopsy zomwe zimabweranso mosatsimikizika, ndinayikidwa pa maantibayotiki ndikuwunika kuti ndiwone ngati pali kukula. Zokhumudwitsa maantibayotiki analibe mphamvu koma ndinapitiliza ndi moyo, kugwira ntchito, kuphunzira komanso kusewera mpira sabata iliyonse.
Panthawiyi, chizindikiro changa chokha chinali kuyabwa, chomwe ndinachisiya chifukwa cha ziwengo ndi kutentha kwachilimwe. Antihistamines angachepetse kuyabwa kwina, koma kumapitilira nthawi zambiri.
Kumayambiriro kwa Marichi sichinakule koma chinalipobe komanso chowoneka bwino, anthu akupereka ndemanga kapena kuloza pafupipafupi, ndidatumizidwa kwa dokotala wamagazi ndipo sindinawawone mpaka kumapeto kwa Epulo.
Chakumapeto kwa Marichi, ndidawona kuti chotupacho chidakula pakhosi panga, sichikusokoneza kupuma kwanga koma kumawonekera kwambiri. Ndidapita kwa GP komwe adandipangitsa kuti ndikawone dokotala wina wamagazi amagazi tsiku lotsatira ndi CORE biopsy ndi CT scan adasungitsa zonse mkati mwa sabata ikubwerayi.
Juggling yunivesite ndi ntchito pakati pa mayesero onse omwe akuchitidwa Pomalizira pake ndinapezeka ndi Hodgkin lymphoma, pafupifupi miyezi inayi nditazindikira chotupa cha pakhosi panga.
Monga aliyense amene simumayembekezera kuti ndi khansa, kukhala ndi zaka 22 komanso kukhala ndi moyo wabwino wopanda zizindikiro zochepa, Akanatha kunyalanyazidwa mosavuta zikanapangitsa kuti munthu adziwe kuti ali ndi khansa pambuyo pake.
Kuzindikira kwanga kunandipangitsa kulingalira momwe ndingapitirizire osati ndi chithandizo chokha komanso zovuta zomwe zingachitike m'tsogolo.
Ndinaganiza zokalandira chithandizo cha chonde kuti ndiumitse mazira anga, omwe anali otopetsa m'maganizo, m'thupi komanso m'maganizo.
Chemotherapy idayamba sabata imodzi nditatenganso dzira langa pa Meyi 18. Tsiku lovuta kwambiri ndi osadziwika ambiri kupita ku chemotherapy, komabe thandizo lochokera kwa anamwino anga odabwitsa ndi mnzanga ndi banja linapangitsa kuti zosadziwika zikhale zochepa kwambiri.
Pazonse ndikhala ndikukhala ndi maulendo anayi a chemotherapy ndi radiotherapy yomwe ingafunike pambuyo pake. Mizere yanga iwiri yoyamba ya mankhwala a chemotherapy inali BEACOPP ndipo ena awiri anali ABVD, onse anali ndi zotsatira zosiyana pa thupi langa. BEACOPP Ndinali ndi zotsatira zochepa zochepa ndi kutopa komanso nseru pang'ono, poyerekeza ndi ABVD komwe ndili ndi neuropathy mu zala zanga, kupweteka m'munsi mwanga ndi kusowa tulo.
Munthawi yonseyi ndakhala ndikudziuza kuti ndikhalebe ndi chiyembekezo komanso kuti ndisadzilole kukhalabe ndi zotsatira zoyipa za khansa zomwe zingandidwalitse, zomwe zakhala zovuta kumapeto kwa ulendo wanga wa chemo ndipo ndikudziwa kwa anthu ambiri. kulimbana.
Kutaya tsitsi kunali kovutirapo, ndinataya milungu itatu m’chigawo changa choyamba cha mankhwala a chemotherapy.
Panthawiyo zidakhala zenizeni kwa ine, tsitsi langa ngati anthu ambiri linali lalikulu ndipo nthawi zonse ndimaonetsetsa kuti likuwoneka bwino kwambiri.
Ndili ndi ma wigi awiri tsopano zomwe zandipatsa chidaliro chochuluka kupita kunja, mantha omwe ndinali nawo poyamba ovala wigi komanso osakhala ndi tsitsi atha ndipo tsopano nditha kukumbatira mbali iyi yaulendo wanga.
Kwa ine, kukhala gawo la magulu othandizira, omwe akuphatikizapo Lymphoma Pansi Pansi pa Facebook ndi Pinki Finss, pulogalamu yothandizira khansa ya m'deralo ndi zachifundo m'dera langa (Hawkesbury) zomwe zandithandiza kupeza chithandizo kuchokera kwa omwe akukumana ndi zovuta zofanana ndi zomwe ndikukumana nazo.
Magulu othandizirawa akhala amtengo wapatali kwa ine. Zinali zolimbikitsa kudziwa kuti anthu ena amamvetsetsa zomwe ndikukumana nazo, komanso kukhala ndi anthu pa intaneti komanso pamasom'pamaso kwandithandiza kwambiri. ulendo uwu.
Mfundo imodzi yomwe ndikufuna kulimbikitsa anthu kuti akumbukire musanyalanyaze zizindikirozo ndikulimbikira kuyesera kupeza chomwe chimayambitsa zizindikiro zanu. Zinakhala zotopetsa kupezeka pamisonkhano yonse ndikuyesedwa mayeso onsewa. Panali nthawi zambiri paulendo wanga wa matenda komwe ndimafuna kusiya osadziwa ngati ndingapeze yankho. Ndikufuna kutsindika kufunika kolimbikira ndikusanyalanyaza zizindikiro zikawoneka.
Zikanakhala zophweka kwa ine kuyesa ndikunyalanyaza ndikuyembekeza kuti m'kupita kwa nthawi zizindikirozi zidzatha, koma Ndine wokondwa poyang'ana kumbuyo kuti ndinali ndi njira ndi chithandizo chofuna chithandizo.
PITIRIZANI ndipo chonde musanyalanyaze zizindikirozo.
