Chimene dokotala wina ankaganiza kuti chinali vuto losavuta la chikanga cha munthu wamkulu mu December 2008 anayamba miyezi isanu ndi itatu ya maulendo a dokotala, kuyezetsa magazi, ma x-ray, ma scan, biopsies, mapiritsi, mankhwala odzola ndi mafuta odzola. Izi zinapangitsa kuti adziwe kuti ali ndi lymphoma. Osati lymphoma iliyonse koma T-cell wolemera B-cell, gulu la 'imvi' la B-cell, non-Hodgkin lymphoma, gawo 4.
Zizindikiro zanga zinayamba mu Novembala 2008 nditabwera kunyumba kuchokera kusukulu. Ndinali ndi zidzolo pamutu wanga zomwe dokotala wina ankaganiza kuti ndi mafangasi. Patapita masiku angapo, dokotala wina anapeza Pityriasis Rosea ndipo anandiika pa prednisone. Ziphuphu zinapitirirabe, zikumakula kwambiri ndipo ananditumiza kwa dermatologist. Anandiwonjezera Mlingo wanga wa prednisone womwe unandiyeretsa kotero kuti pofika tsiku la Khrisimasi ndimawoneka bwino kwambiri ndipo pofika zaka zatsopano, (mlongo wanga wazaka 21) khungu langa linali litatsala pang'ono kubwerera mwakale.
Izi sizinatenge nthawi yayitali ndipo pofika kumapeto kwa Januware zidzolo zidabwereranso.
Pakati pa mwezi wa February miyendo yanga yakumunsi inayamba kuwawa ngati ikupsa. Anatuluka m'miyendo yowoneka yovulazidwa yomwe, pambuyo poyesedwa kangapo, adatsimikizira Erythema Nodosum. Nthawi yomweyo, GP wanga watsopano adalamula kuti apime khungu chifukwa zidzolo zidabwerera ndikukulirakulira. Zotsatira za izi zidawonetsa kuti kangaude adalumidwa kapena kuchitapo kanthu ndi mankhwala zomwe sizinali zolondola. Matendawa amatha pambuyo pa milungu ingapo pa prednisone.
Ndidabwerera kwa dermatologist koyambirira kwa Marichi kuti ndikayesedwe. The zidzolo anali adakalipo ndipo osachita chilichonse mankhwala. Chifukwa zimawonekera mkati mwa chigongono changa chamkati komanso kumbuyo kwa mawondo anga, ndipo ndinali ndi mbiri ya mphumu yaubwana, dotoloyu adasunga chidziwitso chake choyambirira cha chikanga chachikulu ngakhale kuti panthawiyi ndinali ndi zidzolo kumaso, khosi, chifuwa, kumbuyo. , m'mimba, m'mimba ndi m'chiuno. Ndinaphimbidwa mmenemo ndipo zinali zoyabwa momwe ndikanakhalira.
Panthawiyi, khungu langa linali loipa kwambiri moti bambo anga ankandimanga m’manja ndi mabandeji ndisanapite kukagona kuti ndisiye kuwakanda. Chakumapeto kwa Marichi, zidzolo m'manja mwanga zinali zoyipa kwambiri moti mumatha kumva kutentha kumatuluka kuchokera patali. Ndinatengedwa kupita kuchipatala pamene madokotala anandiuza kuti chinali chikanga chabe, kuti sichinapatsidwe kachilombo ndikupeza antihistamine. Tsiku lotsatira ndinabwerera kwa GP wanga yemwe amamva fungo la matenda ndisanamalize kuchotsa mabandeji.
Erythema Nodosum idabweranso koyambirira kwa Epulo. Patapita masiku awiri ndinabwereranso kwa madokotala pamene amayi anali okhudzidwa ndi maonekedwe a maso anga. Chikope chimodzi chinali chotupa kwambiri ndipo zimawoneka ngati ndachita mthunzi wofiirira m'maso onse awiri. Mafuta ena a steroid adathetsa izi.
Patatha mwezi umodzi ndinabwereranso kwa GP ndi matenda mmaso mwanga otchedwa Phlyctenular Conjunctivitis. Madontho a Steroid pamapeto pake adathetsa izi.
CT scan inanena kuti ndizotheka Sarcoidosis koma radiographer sakanaletsa lymphoma.
Anaitanitsa biopsy yabwino ya singano. Patatha masiku awiri, GP wathu adayimbira foni kunena kuti lymphoma yatsimikizika. Ngakhale kuti poyamba ndinali wodabwitsidwa komanso wokwiya chifukwa cha matendawo ndipo ndinalira nazo, ine ndi banja langa tinali omasuka kwambiri kuti ndipeze matenda komanso kudziwa kuti chinali chochiritsika komanso chochiritsika.
Ndinatumizidwa ku RBWH pansi pa chisamaliro cha katswiri wa magazi Dr Kirk Morris.
Dr Morris adalamula kuti ayezedwe kambiri monga kugwira ntchito kwa mtima, PET scan, Bone Marrow ndi Lung function yomwe idachitika sabata yamawa. Bungwe la PET linasonyeza kuti m’thupi langa muli matenda a khansa.
Zikadakhala kuti thupi langa likanadziwa kuti matendawa adatoledwa popeza pakutha kwa mayesowa, thupi langa linali litatseka. Kuwona kwanga kunali kofooka, kulankhula kwanga kunali kopanda phokoso ndipo kukumbukira kwanga kunalibe. Nthawi yomweyo ndinagonekedwa m’chipatala ndipo anandipanga MRI. Ndidakhala m'chipatala kwa masiku 10 pomwe adandipanganso ma lymph node biopsy, ndidawona madotolo awo am'maso ndi maso ndipo ndidadikirira chithandizo chomwe angandipatse khansa yanga.
Kupumula kwanga pozindikira kuti ndipezeka ndi matenda kunapitilirabe m'miyezi yanga yonse ya chithandizo ndipo nthawi zonse ndimafika kuchipatala, kaya ndikapimidwe kapena chemotherapy, ndikumwetulira pankhope panga. Kaŵirikaŵiri manesi ankanena za mmene ndinaliri wosangalala ndipo anali ndi nkhaŵa kuti sindikupirira koma kuonetsa nkhope yolimba mtima.
Chop-R inali chemo yosankha. Ndinali ndi mlingo wanga woyamba pa July 30 ndipo kenako masabata awiri pambuyo pake mpaka October 8. CT ndi PET ina inalamulidwa ndisanaone Dr Morris kachiwiri kumapeto kwa October. Palibe amene anadabwa atandiuza kuti khansayo idakalipo ndipo ndifunikanso mankhwala a chemo, nthawi ino ESHAP. Ananenanso kuti pamakhadiwo pali choikapo maselo amtundu wina.
Chifukwa chemotherapy iyi idaperekedwa ndi kulowetsedwa kwa 22hrs kwa masiku asanu ndikupumira kwa masiku 14, ndidayika mzere wa PIC m'dzanja langa lamanzere. Ndinapindulanso kwambiri pokhala mfulu ku Melbourne Cup ndikupita kuphwando ndisanayambe ESHAP. Izi zinabwerezedwa katatu, kutsiriza Khrisimasi isanafike. Panthawiyi ndimamwa magazi pafupipafupi ndipo adaloledwa mu Novembala kuti athe kukolola ma cell anga kuti andiike.
Panthawi yonseyi khungu langa lidakhalabe lofanana - lopenga. Dzanja langa lamanzere linatupa popeza ndinali ndi magazi oundana mozungulira PIC kotero kuti tsiku lililonse ndinkabwerera ku chipatala kukatenga magazi ndi kuvala zochepetsera magazi komanso kuikidwa magazi. PIC idachotsedwa Khrisimasi itangotha ndipo ndidapindula kwambiri ndikupita kunyanja kwamasiku angapo. (Simungathe kunyowa PIC.)
January 2010 ndipo ine ndinabwereranso ku chipatala kuti ndikaphunzire za autologous bone marrow transplant ( maselo anga a tsinde), ndi mayesero osiyanasiyana oyambirira ndi kuyika kwa mzere wa Hickman.
Kwa sabata adandipopa odzaza ndi mankhwala a chemo kuti aphe mafupa anga. Kuika fupa kapena tsinde maselo kuli ngati kuwononga hard drive ya kompyuta ndikuimanganso. Kundiika kwanga kunachitika mwamsanga nditatha nkhomaliro ndipo ndinatenga mphindi 15 zonse. Anandibwezera 48ml ya maselo mkati mwanga. Ndidamva bwino pambuyo pa izi ndipo ndidadzuka mwachangu kwambiri.
Koma mnyamata, ndinagwa masiku angapo pambuyo pake. Ndinadzimva kukhala wonyansa, ndinali ndi zilonda m’kamwa ndi pakhosi, osadya ndipo patangopita masiku angapo nditandiika, ndinali ndi ululu wa m’mimba. CT idalamulidwa koma palibe chomwe chidawonekera. Ululu udapitilira mpaka adandiika pa cocktail yamankhwala kuti ndichepetse. Ndipo komabe palibe mpumulo. Ndidalongedza zikwama zanga kuti ndipite kunyumba pambuyo pa milungu itatu koma ndidayenera kukhumudwa. Sikuti ndinaloledwa kunyumba kokha, koma anandithamangitsira opaleshoni pa March 1 pamene anazindikira kuti mimba yanga inali yodzaza ndi mafinya. Nkhani yabwino yokha panthawiyi inali maselo a tsinde adatenga bwino ndipo patatha masiku 10 kuchokera pamene khungu langa linayamba kuchira.
Komabe, ndidamaliza kukondwerera tsiku langa lobadwa la 19 ku ICU ndipo ndikukumbukira bwino mabuloni ambiri omwe Annie adandigulira.
Patapita mlungu umodzi ndikukhala pa kolala ya mankhwala opweteka (ambiri mwa mtengo mumsewu) ndi yotakata sipekitiramu maantibayotiki, madokotala mu ICU pomalizira pake anali ndi dzina la kachilomboka amene kundidwalitsa ine pambuyo kumuika - mycoplasma hominis. Sindikukumbukira kalikonse panthawiyi popeza ndinali kudwala kwambiri ndipo ndinali ndi zolephera ziwiri - mapapo anga ndi thirakiti la GI.
Patatha milungu itatu, kuyezetsa magazi, mankhwala osokoneza bongo, mankhwala osokoneza bongo komanso mankhwala enanso okwana madola masauzande ambiri ndinatulutsidwa ku ICU ndikubwerera ku ward komwe ndinakhala kwa sabata imodzi yokha. Malingaliro anga nditakhala masabata 8 m'chipatala pomwe ndidauzidwa kuti 4 sizinali zabwino kwenikweni. Ndinatulutsidwa m’chipatala pa nthawi ya Pasaka polonjeza kuti ndidzapita kukayezetsa kawiri pa sabata. Patangotha mwezi umodzi nditatuluka m’chipatala ndipo ndinadwala matenda a shingles omwe anatha milungu itatu.
Kuyambira pomwe ndidayamba chemo mpaka pambuyo pa ICU, tsitsi langa lalitali lofiirira ndidataya katatu ndipo kulemera kwanga kudachokera pa 55kg kupita ku 85kg. Thupi langa lili ndi zipsera za biopsies, opareshoni, zikwama za ngalande, mizere yapakati, ndi kuyezetsa magazi kochulukirachulukira koma ndilibe khansa ndipo ndakhala pano kuyambira pomwe ndinandiika mu February 2010.
Ndikuthokoza kwanga ogwira ntchito ku RBWH ward 5C, haematology, ndi ICU pondisamalira bwino ine ndi banja langa.
Panthawi imeneyi, ndinatumizidwanso kwa dokotala wamkulu. Ndinali chododometsa chathunthu kwa iye. Analamula kuti ayezedwe magazi 33 maulendo atatu pamene anazindikira kuti milingo yanga ya ACE (Angiotension Converting Enzyme) inali yokwera. Miyezo yanga ya IgE inalinso yokwera kwambiri, nditakhala pa 77 600, kotero adayang'ana matenda a Hyper-IGE. Pamene milingo yanga ya ACE ikusintha adayitanitsanso mayesowa, kundiuza kuti CT scan ilamulidwa ngati mayesowa abwereranso. Ine ndi banja langa sitinasangalalepo kulandira foni kuchokera ku opaleshoni ya dokotala kutiuza kuti pali chinachake cholakwika. Zinkatanthauza kuti tinali m’njira yoti tikapime zomwe zinkachititsa zinthu zodabwitsazi zimene zinkachitika m’thupi mwanga.
